Hi everybody. Thanks for checking in. Dawson is doing really well. He has had a few clusters of seizures as usual today. Allison called his Neurologist and asked if we could go ahead and take him off the Vigabatrin. Thankfully she said yes. I know that Vigabatrin has worked very well for alot of kids, but for us all it seemed to do was make his seizures worse. Or at least make him have a higher number of seizures per cluster.
So hopefully we will see a change for the better in his seizure activity. Other than that he has been his usual happy self. Mom said he had a fussy morning, which is unuasul,but he had a good afternoon and has also had a good evening tonight.
He is almost sitting up on his own now. He can most of the way balance himself when he is leaning front to back. If he ever starts moving to one side he loses it pretty quickly. He is getting the hang of it though and its fun to watch him progress and do all these new things.
Thanks for the prayers. We love and appreciate you all!!
Jeff and Allison
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2 comments:
Jeff & Allison- I fianlly got a link up on my blog. Your little guy is adorable! I can't even begin to tell you how much it hurts to see these videos. Even though we stopped Austin's IS nearly 3.5 years ago, I can still remember it like yesterday. I wish the best for your little guy!
Jen
AustinBenConnor blog
Jeff, you are so right. The videos of the spasms are difficult to watch, it breaks my heart as I know it does yours. He is such a tough little man and I see that he has come an extremely long way! You guys are such great parents and I know that Dawson is so blessed to have you guys watching over him. I am glad to see how much he is growing and developing. I can hear him in this last video laughing and making little noises. He's so, so precious!!! Thanks for taking time to share these images. I love you guys and continue to pray for you ALL!
Rudy
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