We are back from our Neurologist visit. Not much happened during the visit other than us waiting an unusual long tome to see the Doctor. We were hoping to at least get a date locked in for our Birmingham trip but that didn't happen. Soooooooo..... we are going to dose down on the Keppra for right now and see what that does and possibly re-introduce the Topomax later next week.
Seizures continue to be a little better. He did have one large cluster on the way to Huntsville today ( 21) but other than that the past three days we have seen a large reduction in the number of seizures per cluster.
Right now we both kind of feel like were running on a treadmill. Were doing something.... but not really going anywhere. We are still prayerful and hopeful we will soon see these seizures disappear.
We love you all!!
Jeff and Allison
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2 comments:
hey guys...
I'm so sorry that you didn't get answers today! Is there anything worse than all the waiting & not knowing?! Your courage & faith shine tho...
I tried finding a post with the beginning of your story & was unsuccessful? I was wondering what meds you've tried with your little guy? ie. ACTH or Vigabitrin?
Anyway...you're in our prayers tonight...here's to Dawson giving you a good nights sleep!
Hey, I am sorry that I have yet to come and leave a message. Carol has been keeping me informed about Dawson and I have been praying for him and for the both of you. I don't dare say that I have any idea of what you are going through because I don't but I do pray that the Lord will touch both you and Dawson and that the doctor's will begin to give you the answers that you have been so desperately wanting to here. I also want you to know that I have passed Dawson's name along to the church so that they also can be praying for him.
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