Lots of Big news tonight. first of all Dawson is now sitting up all by himself!! What a big boy. Allison and I were at Wal Mart tonight ( GRRRRRRRR) and we had left the kids at Granny's and Grampy's so that the trip would be a little easier, then we get a call from Granny and get the news that he was sitting all by himself. We are very excited. We will get some video of him sitting and post it in the next day or so.
We also found out today that our Birmingham trip will be March 10th. It will be an overnight deal and he will be having multiple test done. VEEG, draw spinal fluid, blood work and a PET scan. The PET scan is the one were dreading most as he has to be put to sleep to do that.
Kudos to Allison for getting on the phone today and seeing that somebody give her a date when we will be there. Squeaky wheel gets the grease right?? I am good at griping about things and she is good at making things happen. Perfect match right.
He was in a much better mood today. Slept a little better too. Still about the same on the seizures. We would give anything to see these seizures leave his little body alone. But we praise God for his progress.
Madison said for me to tell everybody " Thank you!!" And we thank you too.
Love you all!
Jeff and Allison
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2 comments:
Just a suggestion (maybe it's already planned)... wait to do the spinal tap until he's already asleep for the PET. Less traumatizing on him and easier for the drs to get the blood draw safely.
We always try adn get as much done as possible once he's already under anesthesia.
Jen
austinbenconnor blog
I totally agree with the previous post! They did not put Reagan to sleep for her spinal tap and my husband and I had to hold her still while they tried to insert the needle into her spine! She was screaming and crying and it took longer than one might expect...it was traumatizing for everyone involved! I would never agree to another one unless they did it with her under anesthesia!
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