Today has been a great day for Dawson. We had thought we were starting to some changes in seizure activity and go figure as soon as I sit down to type this he started having some. UGGGGGG I wish I could figure this out. There is no rhyme or reason to these stupid things. Yesterday he only had one cluster, the day before only one, and today he had some but they were only a few per cluster and VERY mild. Then this evening he had some harder ones???? I just dont get it.
Hopefully our trip to Birmingham will answer some questions. We are leaving here at about 5:30 in the morning and tomorrow is going to be a long day for all of us. From what I can tell, most of the testing will be done late morning if all goes to plan. Then the rest of our time there will be another 24 hour VEEG. Pray for Dawson tomorrow as he is having these test done. We hope that putting him through it will provide some answers as to how to better treat his seizures. He has a fighters spirit and he will need it tomorrow Im sure.
We had to leave Madison at Granny's and Grampy's for tonight and tomorrow night while we are gone and we both hate having to do that. Theres no telling what she thinks and I miss her terribly already.
Well were going to try to get to bed early tonight to prepare for the day tomorrow.
Thanks for your prayers, and please say a prayer for Dawson in the morning.
We love you
Jeff and Allison
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5 comments:
Praying for you guys as we speak! Good luck today, although I know you will get this when you return home. You are all in my prayers. Love you!
Rudy
GOOD LUCK!
Jen
AustinBenConnor blog
The over-nighters are exhausting...BUT...trust me it helps! I know for me...because SO much of this craziness is outside the realm of answers...the things that provide answers...help. And are worth it.
We'll definately be thinking about/praying for you guys tomorrow...and following!
...danielle
Been thinking about you and praying for you guys this morning! A verse I saw this morning says: "How great is Your goodness, that You have stored for those who fear You, which You bestow in the sight of men on those who take refuge in You"-Psalm 31:19. Just made me think of you guys and how blessed you've been, and how much more He's got stored up to bless you with and how awesome it is for everyone to see! Praying He's your refuge today! Love you!
FYI- here is another blogger who uses UAB, just in case you are looking for any additional info. Her daughter is much older (9?) now.
http://morris-musings.blogspot.com/
Jen
Hope things are going well.
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